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Myasthenia Alliance Australia

The Myasthenia Gravis Associations of Australia have come together under a National Myasthenia Alliance to enhance the support already offered to Australians suffering from the neurological auto-immune conditions categorised under the term ‘Myasthenia’.

The Alliance will provide a strong and unified voice for Myasthenia sufferers by generating more awareness of, and further interest in, these conditions. Through contact with Federal organisations, departments and individuals and by providing a point of contact for Australians from every state and territory, the Alliance provides a targeted forum with items of national importance. The Alliance will enhance the work done by the State Associations.

News and Events

Saturday, October 20, 2018
The Alliance Committee have been meeting at least once a month for the majority of this year and working diligently for its supporters between times. Current projects include planning for a conference in 2019. We are working with Dr Blum to create a Brisbane conference mid 2019. Dr Blum is also chairperson of the newly formed Medical Advisory Group available to the Alliance committee for advice on Myasthenia related issues. We thank him for his particular interest in the work of the Alliance.
Saturday, October 20, 2018
A questionnaire was made available regarding access to this treatment option. Many people responded and the shared information was diverse. Many people have not been offered this treatment. For some, it has been discussed but it has not been a viable choice for varying reasons. For others, this treatment has been used and for most it has been provided by a major hospital for no or little cost to the patient.
Saturday, October 20, 2018
An unfortunate media release occurred in July this year. In discussing the Sexually Transmitted Infection, Mycoplasma genitalium (Mgen), a reference was made to this condition using the acronym MG. This is not the standard abbreviation used for this condition but unfortunately it was picked up by the journalists as a good headline. The article was shared with multiple media outlets and came to our attention via concerned members.

Do You Need Support?

The Myasthenia Alliance of Australia is proudly supported by Australia’s State Associations. If you’re needing help, please visit one of these sites.